Dr. Rodger J. Elble, the Spastics Foundation Medical Director, is Professor and Chair of Neurology at Southern Illinois University School of Medicine in Springfield, Illinois. His research is in studying essential tremors to determine the underlying defect and effect treatments.
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Dr. Stephanie Ceman, the Spastics Foundation Assistant Medical Director, is at the University of Illinois at Urbana-Champaign. She works in the area of Fragile X Syndrome, the most common cause of mental retardation. Her study is now working with song birds, which also carry the fragile X gene, to determine similar links in the human genetic system.
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Dr. David G. McLone, Co-Medical director, Spina Bifida Center at Lurie’s Childrens Hospital; Professor of Pediatric Neurosurgery, Northwestern University Feinberg School of Medicine. He is focused on the areas of the cause and improved methods of treatment in Spina Bifida, Hydro-cephalous and My be Meningocele. In a study using an animal model that fails to show proper neural tube closure, resulting in spina bifida, a team led by Drs. David McLone, Tadanori Tomita and Chandra Shekhar Mayanil has shed light on how Folic Acid influences neural cell development.

Dr. Robin Bowman, is the Director of the Spina Bifida Center at Lurie’s Childrens Hospital of Chicago and Associate Professor, Department of Neurosurgery, Division of Pediatric Neurosurgery.  Her research project was started in 1975 by Dr. David McLone.  Its goal is to enroll all potential patients with any form of Spina Bifida into a long term study in order to follow them longitudinally and study their various outcomes during childhood.

Dr. Andrew Morgan and his wife Kathy are the founders and directors et al of the Penguin Project Foundation. The Penguin Project ® was conceived by Dr. Andrew Morgan to give children with special needs an opportunity to participate in the performing arts. “Dr. Andy” is a developmental pediatrician and the former Head of the Division of Child Development at the University of Illinois in Peoria. His research strives to demonstrate that individuals with special needs are fully capable of participating in community activities with the same dedication and enthusiasm as others, if given opportunity and support.

Dr. Elliott J. Roth, Chairman of the Department of Physical Medicine and Rehabilitation at Northwestern University and Medical Director of the Rehabilitation Institute of Chicago, focuses his research activity in the area of nutritional problems after stroke and the impact on rehabilitation outcomes.

Dr. Daniel Tranel, Professor of Neurology and Psychology and Director of the Postdoctoral Residency in Clinical Neuropsychology at the University of Iowa in Iowa City, is involved in the research of Diagnosis, Management and Treatment of Alzheimer’s Disease.

Dr. Grayson Holmbeck is the Director of Clinical Training at Loyola University’s Department of Psychology in Chicago. Dr. Holmbeck also works with Dr. McLone, one of the Spastics Researchers at Children’s Memorial Hospital. Together, they are working on occupational and emotional therapy to provide greater independence to spina bifida survivors who are now living well into adulthood as a result of our research!  His research at Camp Independence is documented by clicking here.  See also

Bradley L. Schlaggar, MD, PhD is the Chief of Division of Pediatric and Developmental Neurology at Washington University School of Medicine. He is the A. Ernest and Jane G. Stein Associate Professor of Developmental Neurology, in Neurology. He is also an Associate Professor of Radiology, Anatomy & Neurobiology, and Pediatrics. Dr. Schlaggar's current research efforts are directed at brain activation studies in development and plasticity of human cognition and language using functional MRI. His clinical responsibilities include pediatric movement disorders, pediatric stroke, and hemiplegic cerebral palsy. See

Daniel A. Llano, MD, PhD is Assistant Professor in Molecular and Integrative Physiology and the College of Medicine, Beckman Institute at the University of Illinois, Urbana- Champaign. Dr. Llano’s laboratory studies the mechanisms by which complex sounds, such as speech, are processed by the auditory system. His research studies “Tinnitus” or ringing in the ears. His work will be able to 1) test hypotheses about the reorganization of the auditory cortex during tinnitus and 2) assess the impact of new treatments for tinnitus on relevant brain networks.

Past Researchers:

Dr. Janet Rowley was a Professor at the University of Chicago, Pritzker School of Medicine. Her research included work in the area of Cytogenetics. By studying the chromosome abnormalities, she anticipated being able to predict, with a high degree of accuracy, possible future pathological conditions such as Down's Syndrome, leukemia and spasticity. Dr. Rowley was awarded the Presidential Medal of Freedom by President Obama in 2009. 

Dr. T.S. Park is Neurosurgeon-in-Chief St. Louis Children's Hospital at Washington University School of Medicine. He is operating on spastic paralysis patients, on the spinal canal to alter pathways, to trim and alter spinal cord flow and reduce rigidity and spasticity.